Tuesday, 9 April 2019

Cassie and Friends at School: A Puppet Show to Create Awareness of Juvenile Idiopathic Arthritis (JIA) and Other Rheumatic Diseases


Photo of puppeteers March 6th, 2019
The 'Cassie and Friends at School' puppet show highlights the important role of an occupational therapist for children with juvenile idiopathic arthritis and other rheumatic diseases. Occupational therapy fieldwork student Dina Brown attended the puppet show and interviewed the puppeteers as well as Jennifer Wilson, the executive director of Cassie and Friends.

What is the intended purpose of the puppet show?
Cassie and Friends at School is a puppet show for kids about ability, difference and friendship. The program’s goal is to help raise awareness and understanding about what it’s like to live with juvenile arthritis and to illustrate some of the challenges a classmate with juvenile arthritis might be facing such as pain, isolation, depression and mobility challenges. Of note, the puppet show features the role of an occupational therapist that helps Cassie to manage her juvenile idiopathic arthritis and enables her to participate in school.


What has the impact of the puppet show been?
One parent wrote to us: "The show brought such impact and awareness to the school, a couple days after the show I was brought into the school for a meeting with the principal and other teachers and they all wanted to help out my daughter and any other child as much as they could now that they know more about juvenile idiopathic arthritis."

The puppet show also creates awareness that kids get arthritis, not just older people, and that it can be a very challenging condition for a child. The puppet show highlights shared differences, friendship, asking before helping, how to talk about differences, inclusiveness and the little ways we can all help make the school day easier for kids with arthritis. These themes are universal and can relate to issues other than arthritis. The general reaction from children is they ask very empathetic questions, which shows they are beginning to understand more about it.

What inspired the choice to have an occupational therapist (OT) in the play Cassie and Friends at School?
Physical therapy and occupational therapy play an important role in helping a child to manage their arthritis. Previously our script had a scene with a teachers aid and there was just mention of being off to an “OT” appointment. The kids were so curious about what that meant and the exercises Cassie had to do that we decided to include an OT visit to give them a better sense of what kids go through living with arthritis and things that can help.

What is generally the response from adults and children to the OT in the play?
Kids and adults are surprised that occupational therapists play a role in the care of kids with arthritis. And they are excited at the idea of school and play being a kids’ “work” and the ways OTs can help them stay active and involved in everything their friends do.

What are the benefits of kids with JIA and other rheumatic diseases being able to access occupational therapy services?
Kids love to run, play, get involved in sports, draw, build and so much more. OT can help kids be kids, even in the face of pain and chronic disease, by giving them tools and aid to help them to do all the things their friends do with greater ease. We have seen what an incredible resource and support OTs can be to children who need help developing and/or regaining the skills they need to participate in school, social activities, sport and life!

Aside from the puppet show, what kinds of initiatives are Cassie and Friends currently working on?
Cassie and Friends is now active in 8 hospital centres across Canada and hope to reach 10,000 or more kids and families across Canada in the next few years to provide more hope through research, support and connection!

How to book Cassie and Friends puppet show:
Cassie and Friends is on a mission to raise awareness about Juvenile Arthritis (JA) in every community where a kid is affected – in other words, all of them! Cassie and Friends at School show has now reached over 20,000 elementary school children and educators in the Lower Mainland and across British Columbia. They regularly fundraise and work with sponsors to bring the show to other communities as much as possible. The show is totally free to schools and aimed at grades K to 5.

Cassie and Friends’ dream is to create an animated version of the show so that any child in any community can benefit from increased understanding at school and we can keep spreading awareness that kids get arthritis too.

For more information visit http://cassieandfriends.ca.
If you would like information about a performance at your school or an information package to share with the school principal, please contact: kob.cassieandfriends@gmail.com

Post by Dina Brown, occupational therapy fieldwork student on placement with CAOT-BC.

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